There are a number of diseases that affect the human body tremendously and eventually can be fatal, one such disease that is not as well known as others is Cystic Fibrosis.
According to The Cystic Fibrosis Foundation (CFF), “In people with CF, a defective gene causes a thick, buildup of mucus in the lungs that clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure.”
Patients with CF experience throughout their life extreme coughing, shortness of breath, chronic mucus buildup and an extreme lack of nutrients. This disease can be very difficult for the victim as simple tasks like walking can be a struggle. Not only do these physical ailments affect the patient tremendously but CF patients can also experience a range of mental disorders that come about with trying to cope with a short life expectancy. According to the National Institutes of Health (NIH), the current average life expectancy for CF patients in the United States who live past childhood is about 37 years.
Patients of Cystic Fibrosis have no choice but to live with the fact that their life expectancy is much shorter than people without CF and this can be painful for them and their loved ones. Sasha Martin, a student at Southeastern who recently lost friend to CF says, “Losing my good friend Lauren to Cystic Fibrosis has been a difficult experience because it has made me realize with great sadness that some people must carry on knowing their time is limited, all the while suffering physically and mentally because of this disease.”
There is currently no cure for CF but there are a number of events and ways that the CFF raises money for research as well as awareness for the disease throughout society. One such local event is the Crawfish Cookin’ For a Cause taking place at 11 a.m. on May 6 at the Mandeville Lakefront Harbor. The event is $25 and offers attendees all the crawfish you can eat while enjoying a fun day that funds the Cystic Fibrosis Foundation as well as few other foundations.
To stay up-to-date with events funding the CFF and information on CF research, like and subscribe to the foundation’s Facebook page